Zipper being removed!

This past Friday I went to see my own Doctor, as it was almost 2 whole weeks since my surgery.  He was very happy with how my scars all looked, and then asked me to go to get more blood work done, and and ECG.  He then sent me to see his nurse, to have the staples removed!

Apparently they do not agree with taking all the staples out in one session, so it was a case of taking every other one out, and there is a round dozen left to be removed.  I kept being told it was not painful to have them removed, and I will say it was just a pinch I felt as they were taken out, but was when I realized that I had not taken any pain meds that morning, which would have taken the edge off it.  I was told quite firmly by the nurse, that pain meds are not addictive, and that there was no need to be that brave.

My Dr had not received any reports back from the hospital, so it will not doubt be this coming week before he gets the Pathology results back. I am eager to get what all the Dr’s at the hospital suspect, is that the tumour was confined and had not spread.

On Saturday, I went to the local hospital to have the bloods taken (essentially to get the Creatinine level) and the ECG, to see how my heart is doing after having half the Cardiac Ablation done before the Kidney surgery.

My aim is to get the Cardiac Ablation completed before I return to work, and hoping that Urology and Cardiology with cooridinate to make it easier to get it done in one trip to Halifax, to avoid having to do the journey twice.

My strength is improving every day, but I do go to bed to rest for an hour or two every afternoon, and I do usually sleep.

My sister who came down from Toronto on 19th October, the day before the surgey’s original schedule, finally went home on Saturday after 3 weeks. My Mum arrived from the UK on Thursday to stay for 3 weeks to take care of me, so I am in good hands.

Posted under Gemma A S.

This post was written by Gemma A.S. on November 9, 2008

The Deed is Done – Finally!

After several false starts, my Right Kidney was removed laparascopically on October 27th.

Having been scheduled for the surgery on October 20th, it had been a long week – On the original schedule I was there before 8am to be prepared and ready for surgery, and knew I had a 3 hour wait until 11am for my turn. 11am came and went, and by 11:30am I made myself comfortable across three chairs, and went to sleep. Midday came and I was being woken up, time to walk down the hall: hugs for Jerry and my sister, and off I went. Walked down to OR #12 right down the end.. and was asked to hop on a stretcher.. and was then told that they weren’t quite ready for me, that they would be back to me soon.. I was then on my own for half an hour, and eventually they bought out the previous patient… THEN… the mops and bucket parade were going back and forth.. and THEN EVENTUALLY… they remembered I was there… and YES they always knew I was there… BUT… too much time to think about things, cry to myself, feeling very alone… but now they were here to do the consent, and ask all the same questions all over again, mark my Right hand so they know which Kidney they were removing.. they asked me several times… and then I got worried and asked them … I hope you are not relying totally on my answer here, and relying on the SCANS to decide which Kidney to remove.   Finally, they asked if I was ok to walk into the OR, and I said yes… got settled on the table in OR, and everyone is introducing themselves, and chatting away.. the IV to relax me finally gets done.. and then the decision as to whether to put the additional IV in to monitor my heart should go in before or after putting me out, so the O2 mask went on and then taken off, and then Finally ON, and I was ready in myself, like this was it… and I then there is a lack of continuity, I just know it was cancelled due to my heart being too irregular, and the Anaethetist got nervous.  It was cancelled and I was being sent home… but fortunately a senior Intern said that since I had being given this IV, that they should take me to recovery and keep an eye on my heart… by this time I can’t stop crying, so my heart was totally, totally irregular.. I am angry that all this preparation had gone to waste, they knew about this and should have been ready for it.

In the meantime, my husband got a call from the surgeon to say the op was cancelled and I was being sent home. It took them an hour and a half before they got to see me.. as I was still in recovery. I think while all this was going on, they realized that sending me home was not an option, that since it was vital to remove the kidney soon, that they had to deal with the heart condition, so from recovery they took me to my room on the ward. 

That became the start of a very interesting week, I saw umpteen Dr’s, all trying to decide what was going on, and what specialists I needed to see. I got day passes to go shopping, or an evening pass to go out to eat.. but on Thursday 23rd October, I was prepped for a Cardiac Ablation first thing on the 24th. I probably had an hour’s wait before the procedure, but they were only able to do half of it. They concluded that the problem is in the top left Ventricle, and to go in there, you need blood thinners in order to avoid a heart attack or stroke, and my Urologist said that could not go ahead before the Kidney was removed, as it would cause increased risk of bleeding during that procedure. 

My op was now scheduled for the Saturday 25th October, when they only have one OR room in use. However, late Friday it was again cancelled, as due to an accident, the OR was taken up with 2 Kidney Transplants, and a Liver Transplant. The good news was that the Urologist changed his Monday schedule, so that I was first in on the Monday 27th October. On Sunday I was prepped and again ready for surgery.

Monday morning came and they collected me on my trolley, took me all the way to OR #11, where I had someone with me outside the room the whole time. By this time I had a ‘Dream Team’ of Urology residents that I had come to know and trust, and they were all there to make sure I felt safe and relaxed. My anesthetist of the day was Andrew a Scot, who loved ‘Dr in the House’ the old films of the 60′s, so he was an immediate friend. I did not have to walk into OR, and was transferred onto the OR table.. and after introductions to the nurses, they did not wait long to put me under.

In Recovery, I remember a resident asking the OR nurse how I was doing, and she said I had kep saying ‘I Made It, I Made It’, which made me realise what my mind set must have been going into the surgery.  The surgery had only taken 2 and a half hours, and after another 2 hours I was back on the ward.

My Urologist came by with his team later that day, to tell me the surgery had gone perfectly, and all I now needed to do was recover and go home. He only came by one more time one evening on his own to check on me. His ‘Dream Team’, well they came by every morning, and often times individually during the day, and felt cosseted by them.

I did have to go to have a Cardiac Scan (Ultrasound) the day after my surgery, and they ruffed me up pretty bad, to the extent that when I was back on the ward the air was ‘BLUE’, and 3 of my ‘Dream Team’ appeared at the right time to lift me back into my bed.. but apart from this Ultrasound, I really was well looked after.

I am a Survivor!

Posted under Gemma A S.

This post was written by Gemma A.S. on November 6, 2008

DANGER – BEWARE – CAVEAT

Hi,

PLEASE READ The Times article on co payment in the NHS whichcan be found at:
(If you press down trl and then click on the URL it will open in another window)

http://www.kidneycancerresource.com/ind … _04-Nov-08

There is a huge danger here – Yes it may be great news that YOU can fund your own drugs if the NHS abrogates onm its duty and selects YOU for EUthenasia but in the hands of a Government which since Gordon Brown took over responsibility for Britain’s finances has incurred debt at the rate of £9,111 per second 24 hours a day and is personally directly responsible for Britain’s exposure to the so called credit crunch as a result of permitting Banks to buy junk paper from America as sordid self seeking gamblers.

Do remember this is the man who incurred £2TRILLION of debt which counted at £1 a second will take 63,000 years to count.

Perhaps I am a tad sceptical when the BBC under his control pays imbecillic and irresponsible foul mouthed children £16,000 a day on £18Million contracts – no wonder it is convenient to kill people as his Government’s policy rather than pay for the drugs.

I believe, based on the duplicity and corruption of our politicians and the FACT that they are paying huge amounts to N.I.C.E. & P.C.Ts. etc. to hide the Governments corruption rather than fund treatment & drugs, there is every reason to believe that They will shortly open Harold Shipman Wards in NHS Hospitals for those they intend to kill UNLESS you pay for your own drugs!

This is the thin end of a very evil wedge – don’t hold out ANY hope the opposition will speak out – Theresa May last week when picking the opposition choice for a HoC debate whilst credit collapses, unemployment spirals out of control, bankruptcys burgeon, and a currency crash tsunami is imminent chose THE most important subject the Tories could think of: ‘Did the BBC handle the Jonathan Ross affair competently’ Frankly Theresa that may be the most important event the Tories are capable of handling but frankly who gives a ****!

I support EUthenasia by choice I Totally Repudiate State Murder!

Regards,
Greg L-W.

Do by all means send copies of this to your MEP; MP; Councillors; National & Local Meeeeja over your signature or mine – they may phone me for comment on 01291 – 62 65 62

 

Posted under Cancer Drugs, General, Greg Lance-Watkins

This post was written by Greg Lance-Watkins on November 4, 2008