A New Start to 2009 …….

It’s been quite a while since I wrote my last blog, but to be frank there hasn’t been that much to shout  about, and with this wretched credit crunch my mind has been somewhat focused elsewhere.

So whilst we’re all sitting here at work waiting to see if we have jobs at the end of the week or not I thought I’d put my fingers to the keyboard and see what comes out.

Out of this financial gloom something exciting has happened in the last week.  As of now there is a fully blown Kidney Cancer Support Network web-site which includes a large map of the UK showing us where people are, plus there’s a new forum to bring people together and where we can share our experiences and views.

Since the James Whale Fund closed their forum down there hasn’t really been anywhere to go that’s genuinely active and patient lead, but I was so heartened to see that they’ve put so much effort into making Rose’s dream a reality.

What we have now are groups working cooperatively, with the James Whale Fund, the Kidney Cancer Support Network and the Kidney Cancer Resource all helping each other and all focusing on different core areas.  Those core areas being Funding and Awareness, Patient Support, and finally, Information provision.

I do believe that since the N.I.C.E. demonstration back in the Autumn of last year there has been a change, it showed that people coming together like that can make a difference.  Thanks has to go to Clive and Jan Stone for making this happen.

Clearly I’ll be putting up a more formal announcement on KCR to celebrate the opening of the Kidney Cancer Support Network.

I’m looking forward to the coming months and seeing this all come together. 

Nice one Rose and lets hope that the NICE decision on Wednesday of this week is the one we’ve all been waiting for.

Posted under Andy Thomas, General

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