Comments on: Kidney Cancer – is it the wrong type of cancer !!! http://www.kidneycancerbloggers.com/2010/02/kidney-cancer-is-it-the-wrong-type-of-cancer/ Have your Say Fri, 13 May 2011 12:21:11 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Chrissy Newman http://www.kidneycancerbloggers.com/2010/02/kidney-cancer-is-it-the-wrong-type-of-cancer/comment-page-1/#comment-7660 Chrissy Newman Fri, 19 Feb 2010 06:15:45 +0000 http://www.kidneycancerbloggers.com/?p=550#comment-7660 I take my hat off to those people that do charity runs, car washes, shaves, morning teas, whatever, but I would bet my bottom $$ (I am in Australia) that they, as we were when Jeff was dx back in 1996, think that cancer is cancer is cancer. They are raising funds to find a cure for "cancer", not realising that it is only an umbrella name for over 200 different diseases. People were of the mind that RCC wasn't a "real/serious" cancer when we told them about it, as there was no chemo involved. When he had mets return in his lungs in 2003, they had to be re-educated again ... "no, he does not have lung cancer". I agree with what Maria said on the ACOR list. It is the inequality of the funding that sucks. Don't get me started about breast cancer. I don't wish any cancer on anybody ... as mentioned, Jeff is a 14 year survivor (the past 7 as stage 4) of RCC and I am a 23 month survivor of stage 3 esophageal cancer ... but there has to be equaality of care and treatment. keep up the good fight. Chrissy I take my hat off to those people that do charity runs, car washes, shaves, morning teas, whatever, but I would bet my bottom $$ (I am in Australia) that they, as we were when Jeff was dx back in 1996, think that cancer is cancer is cancer. They are raising funds to find a cure for “cancer”, not realising that it is only an umbrella name for over 200 different diseases.

People were of the mind that RCC wasn’t a “real/serious” cancer when we told them about it, as there was no chemo involved. When he had mets return in his lungs in 2003, they had to be re-educated again … “no, he does not have lung cancer”.

I agree with what Maria said on the ACOR list. It is the inequality of the funding that sucks. Don’t get me started about breast cancer.

I don’t wish any cancer on anybody … as mentioned, Jeff is a 14 year survivor (the past 7 as stage 4) of RCC and I am a 23 month survivor of stage 3 esophageal cancer … but there has to be equaality of care and treatment.

keep up the good fight.

Chrissy

]]> By: Maria http://www.kidneycancerbloggers.com/2010/02/kidney-cancer-is-it-the-wrong-type-of-cancer/comment-page-1/#comment-7552 Maria Wed, 10 Feb 2010 18:44:51 +0000 http://www.kidneycancerbloggers.com/?p=550#comment-7552 Here here Rose! When my husband dies of this dreadful disease as he surely will given his diagnosis and the refusal of 2nd line treatment, my family and I are unlikely to be a "burden on the state" as I have a good job and am the main breadwinner. However, the lack of foresight on the part of NICE means that many families will be forced onto state benefits through their need to care and later loss of opportunity to return to work. All this at a far greater cost than £100 per day. Here here Rose!

When my husband dies of this dreadful disease as he surely will given his diagnosis and the refusal of 2nd line treatment, my family and I are unlikely to be a “burden on the state” as I have a good job and am the main breadwinner. However, the lack of foresight on the part of NICE means that many families will be forced onto state benefits through their need to care and later loss of opportunity to return to work. All this at a far greater cost than £100 per day.

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