Comments on: My letter to N.I.C.E. with regard to the Afinitor decision. http://www.kidneycancerbloggers.com/2010/02/my-letter-to-n-i-c-e-with-regard-to-the-afinitor-decision/ Have your Say Fri, 13 May 2011 12:21:11 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: AndyThomas http://www.kidneycancerbloggers.com/2010/02/my-letter-to-n-i-c-e-with-regard-to-the-afinitor-decision/comment-page-1/#comment-9218 AndyThomas Fri, 23 Apr 2010 16:03:06 +0000 http://www.kidneycancerbloggers.com/?p=603#comment-9218 I'm afraid I got the stock response back from NICE trying to explain their idiotic QALY calculations, so nothing of any use. However the fight will go on until we get some sense out of them. On the positive side at least the issue is getting some air time with the elections. http://www.jameswhalefund.org/page_610.html I would also keep looking on the forum and talking to Rose as she is very much plugged into this I’m afraid I got the stock response back from NICE trying to explain their idiotic QALY calculations, so nothing of any use. However the fight will go on until we get some sense out of them.

On the positive side at least the issue is getting some air time with the elections.

http://www.jameswhalefund.org/page_610.html

I would also keep looking on the forum and talking to Rose as she is very much plugged into this

]]> By: Bobby Mc Donald http://www.kidneycancerbloggers.com/2010/02/my-letter-to-n-i-c-e-with-regard-to-the-afinitor-decision/comment-page-1/#comment-9203 Bobby Mc Donald Fri, 23 Apr 2010 10:34:25 +0000 http://www.kidneycancerbloggers.com/?p=603#comment-9203 I was interested to read your letter. My daughter ahs been told that she has chromophobe kidney cancer. She has had two cycles of Sutent which has not worked. The oncologist submitted an application for TORISEL which was rejected on economic grounds. Did you get a reply to your letter re Afinitor. I was interested to read your letter. My daughter ahs been told that she has chromophobe kidney cancer. She has had two cycles of Sutent which has not worked. The oncologist submitted an application for TORISEL which was rejected on economic grounds. Did you get a reply to your letter re Afinitor.

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