Nerves are shot, waiting on my result!

I had been getting nervous knowing my followup scan was looming, and went for the CT Scan of Chest and Abdomen yesterday morning, so now a case of waiting.  I am hoping my own Dr will have them on Monday, as I don’t see the Urologist until March 5th. 

When I got there I noticed that the requisition had ‘with Contrast’, and I said I don’t think so.. so they telephoned and checked and sure enough – no contrast.  I realise that if I wasn’t keeping an eye on things, they would have gone ahead and given me the die.  On the requistion I also noticed Creatinine 112, up from 95, and I was not expecting that.  I realise that I have not been drinking hardly any water.. just tea, which I am sure will be why it is back up a little. 

Of course the fact that it is up, is not helping with the nerves, as you wonder if there is something else going on.

I feel very selfish posting yet again about little old me and my problems, whereas the other posts are about N.I.C.E. and all the issues with them, but at scan time, this is seemingly all I can think about.

Writing this is kind of therapeutic for me, writing down the fact that I am anxious about the result, will hopefully take away a little of the stress.

I did recently go for a reading with a Numerologist who is also a psychic, and she said that I am healing, she even said that my aura colors are healing, this is without her knowing about my history. So I am holding on to that, and hoping she was right.

Will update again next week, once I have my result.

Guess what I am doing right now, Drinking water like it is going out of fashion, at least the Creatinine result has been a wake up call for me.

Posted under Gemma A S., N.I.C.E.

5 Comments so far

  1. karen in ottawa canada February 19, 2010 9:13 pm

    Hi Gemma – we all know about that anxiety, I hope your GP has good news for you on Monday. I see you are having your scans without contrast – is this because your Creatinine levels have been too high? I ask because I am still scanned every 3 months, and I have to drink 2 large glasses of clear liquid, AND I also get injected with the dye. When I asked about this, my doctors assured me that the ‘dye’ has been amended recently, so that it is much easier on my one kidney. As long as I drink lots of water before & after the scans, my docs prefer the contrast, as they get better images. My creatinine reading was slightly high at 113 last fall, but my oncologist said this is fine when living with 1 kidney. He said it wouldn’t become a major problem unless it got closer to the 200 reading mark. I’m interested to hear how others are doing with their creatinine and if they have contrast with their testing.
    All the best to you.

  2. Gemma A.S. February 19, 2010 10:29 pm

    Hi Karen
    Thank you, I am sure I will be fine, but I just have to keep busy till Monday. I am in Nova Scotia, originally from Wales, I would love to keep in touch with you.

    My Creatinine was 133 pre operative a year last October.. and then it was down to 112/114 this time last year then down to 98 and then 95 last October.. so the 112 today was not really high at all. I made an assumption that from now one I wouldn’t get the dye due to being down to one Kidney.. I drink Redicat before the scan and that is it. I may ask my specialist next time I see him in March about this. Might be an idea even if it done with the dye once a year.

    I am still only seeing my Urologist as the cancer was contained, and the whole kidney removed. My Urologist said that it was up to me, but didn’t think I needed to see an Oncolgist.

    I would be interested to hear more of your situation. I will email you.
    Thanks
    Gemma

  3. Rose Woodward February 20, 2010 9:09 am

    Hi Gemma & Karen,

    Power of positive thoughts for the scan results – it’s an awful time isn’t it… are you on FaceBook – we have quite a few KC patients ( well 100′s actually). Let me know and I’ll send you a friend invite – it’s good fun seeing what everyone is upto apart from KC – photos as well – Crikey !!

  4. Jackie February 22, 2010 4:34 pm

    Hi I have plain water now prior to the scan but still have injected contrast dye( they do use one that is safer for my kidney now). My creatinine is usually anywhere from 132-148! No one has ever said what it should be with one remaining kidney with tumours in it, so I was interested to hear of your levels. I drink my 2litre of water every day, plus green tea and rice milk on cereals, so I do get my fluid intake but my creatinine is always above 132. Hope your scan results are good! xx

  5. Gemma A.S. February 22, 2010 4:48 pm

    Thanks Jackie, my results were fine. However I do have to go see a Nephrologist as they say my kidney function is down. I am going to check with my consultant if I am ok to have contrast next time.. ?

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