Article Cancer Drugs Fund to get £200m a year

Rose Woodward – Patient Advocate

At long last…… confirmation that the

Cancer Drugs Fund to get £200m a year  

There was good news for cancer patients in England this week after the government confirmed it will provide £600 million for a three-year fund to improve access to new cancer drugs on the National Health Service.

There had been fears that the pot may be reduced under the current spurt of cost cuts, but the Department of Health announced yesterday that £200 million a year will be made available for the Cancer Drugs Fund from 2011 to 2013. 

The move is designed to help patients get better access to therapies recommended by their specialists, even if they have not been approved by cost regulator the National Institute for Health and Clinical Excellence, giving clinicians yet more power to dish out the treatments they feel are the most appropriate.

In addition, it is hoped that the extra cash pile – which is separate from existing Primary Care Trust budgets – will also help to improve the country’s ranking in terms of the provision of innovative cancer treatment to patients, as it is low on the list compared with many of its global peers.

Just a few weeks ago the government said it is has also set aside £50 million for an interim fund to help patients get treatment with drugs that have the potential to extend survival or improve quality of life before the fund ‘proper’ is launched next year, with clinically-led panels deciding on how to spend this money for patients locally.

The move does not take away from NICE’s remit, as the Institute will continue to appraise most significant new drugs and will have an important part to play in the government’s plans to switch to a system of value-based pricing for new medicines when the current Pharmaceutical Price Regulation Scheme expires, it said.

“Our longer-term plans will change the way we pay for drugs so that patients get better access to drugs and the NHS and the taxpayer get better value for money,” commented health secretary Andrew Lansley.

Consultation launched

The DH has now kicked off a consultation over its plans, seeking public opinion on the arrangements and other proposals for the fund’s operation, including ways in which patients and clinicians can be supported to make the best treatment decisions and what the scope of the Fund should be.

The Association of the British Pharmaceutical Industry has welcomed the launch of the public consultation and the government’s commitment of £200 million a year to help boost patient access to innovative cancer treatments.

Director-General Richard Barker said the consultation raises many important questions about how the fund will operate, such as “whether the fund should be administered at regional or national level and how to ensure that NHS cancer patients across England have a fair, timely and equal opportunity to benefit from the fund”.

The consultation will run until January 19, 2011.Its really important that as many cancer patients and families complete the consultation document and let the NHS know how we feel and to stress the need for this Cancer Drugs Fund to be continued for as long as some people in the NHS wish to refuse treatment to cancer patients.

 Please contact me if you would like a consultation document sent to you by email..

contact@kidneycancersupportnetwork.co.uk

or download it from our patient forum at     www.kidneycancersupportnetwork.co.uk

Rose Woodward

Posted under Afinitor(aka Everolimus/RAD001), Avastin, Campaigns, Cancer Drugs, General, N.I.C.E., Nexavar, Patient Day 17thNov2010, Rose Woodward, Social Medicine, Torisel

This post was written by Rose Woodward on October 28, 2010

What’s new in Nova Scotia?

It has been so long since I posted to my blog, I don’t even know if this is still active as a site. Someone please tell me if I should be starting a bog somewhere else.

The latest news is that both scans this year have been clear.  My Creatinine is down to 90 and eGFR up to 57. I was seeing a Nephrologist for a few months, who was watching my cholesterol, but that is now down under 2 so he did not want to see me again.

I have however been laid off just over a week ago, and didn’t see it coming. I have immigration issues, and can’t work anywhere else, and my not get unemployment.

I am using my time wisely I hope, taking care of my chickens, cockerels  just learning to crow.. oh and I have a DVD called punch up your walk, and am building up to a 4 mile walk every day, exercise I was not getting while working.

Posted under Gemma A S.

This post was written by Gemma A.S. on October 22, 2010

James Whale Fund for Kidney Cancer Curry Night a Huge Success

What a great evening we all had last night at “Le Raj” in Epsom Downs. The food was fantastic, the staff were excellent and I can’t believe that Enam Ali gave all of this for free! which meant all the money raised went to the Fund directly.

I cant remember the exact total that Chris Tarrant and Shane Richie raised in the auction at the end of the meal but they’re clearly used to doing this kind of stuff and used all their guile to eek out every last penny from the diners. The bids went way beyond my wallet capacity.

So, was a Chris Tarrant the same person off screen as he is on screen? I asked if he minded me taking a photo, you make up your own minds……

One of the bids got very confusing, it started as “A days archery with James Whale and a few of his friends” and ended up as (and this is my best guess) “A day with Shane Richie dressed as Robin Hood in the forest with the person bidding dressed, (or not), as Lady Godiva on horseback”. Anyway money has changed hands now, promises have been made and photographers are on standby, so good luck with that one Sandy! And let’s hope it’s a warm day!

As usual the James Whale Fund team did an excellent job of pulling this all together, they do it with such ease now it all seems second nature, although I’m sure Sarah would say something different.

Great night out! Thanks.

All the money raised goes towards helping fund initiatives for Kidney Cancer such as the Nurses Training Courses and the Patient Day on the 17th November

Posted under Andy Thomas, Patient Day 17thNov2010

This post was written by AndyThomas on October 20, 2010

JAMES WHALE FUND ISSUED THE FOLLOWING PRESS RELEASE ON BEHALF OF KIDNEY CANCER PATIENTS IN ENGLAND

JUST TO LET YOU KNOW THAT TODAY THE JAMES WHALE FUND ISSUED THE FOLLOWING PRESS RELEASE ON BEHALF OF KIDNEY CANCER PATIENTS IN ENGLAND

Following on from Health Secretary Andrew Lansley’s announcement in July, an interim £50 million cancer drugs fund was launched today which could grant access to vital life-prolonging drugs for thousands of cancer patients.

Broadcaster James Whale, founder of the James Whale Fund for Kidney Cancer, said “Today’s launch of the Interim Cancer Drugs Fund offers a ray of hope to kidney cancer patients, many of whom are in the depths of despair because they have been denied cancer treatment by their local NHS Primary Care Trusts. We applaud the creation of this Cancer Drugs Fund, but we need to know the Fund really will do what the Prime Minister told us it would”

Rose Woodward, a survivor of kidney cancer and Patient Advocate for the Fund expressed caution; “ we have spent the weeks since the announcement of the Interim Cancer Fund trying to find out from NHS managers how cancer patients could access the millions of pounds in the Fund. We have kidney cancer patients lined up waiting to be told how this Drug’s Fund will actually work. At the moment it is yet another hurdle for patients to jump over at a time when they are ill & deeply distressed. We are told patients still need to be refused twice by PCTs before their doctors can apply to the Drugs Fund. This is not good enough – the NHS needs to get its paperwork in place before raising patient’s hopes.”

If you need any advice about the Fund or the processes that govern it , then please drop an email to me at the email address below .

Many of you will have noticed that in the above press release article we could only talk about kidney cancer patients in England, quite what is happening in Wales or Scotland we are not being told, if you have any information or can find out please post it here or let me know and we’ll make sure the patients concerned get the best help we can give them to get a similar arrangement. It’s shocking that this new Fund should discriminate against patients in Scotland and Wales – has the world gone stark raving bonkers. If the drugs work in England then they will work on Wales or Scotland. Every patients life is valuable not just the English!

Julia Black who works so hard as a patient advocate for us all is doing a lot of work on this and is in correspondence with all the Strategic Health Authorties around the Country so we’ll keep you posted. When we know so will you.

Take care,

Rose Woodward – contact@kidneycancersupportnetwork.co.uk

Posted under Uncategorized

This post was written by Rose Woodward on October 1, 2010

The James Whale Fund speaks out on the New Interim Cancer Fund

Good to see that the James Whale Fund is keeping the pressure on for Kidney Cancer patients across the UK.

James Whale said “Today’s launch of the Interim Cancer Drugs Fund offers a
ray of hope to kidney cancer patients, many of whom are in the depths of
despair because they have been denied cancer treatment by their local NHS
Primary Care Trusts. We applaud the creation of this Cancer Drugs Fund, but
we need to know the Fund really will do what the Prime Minister told us it
would”

Rose Woodward, herself a survivor of kidney cancer and Patient Advocate for
the Fund said they had spent the weeks since the announcement of the interim
Cancer Fund trying to find out from NHS managers how cancer patients could
access the millions of pounds in the Fund. Rose said ” we have kidney
cancer patients lined up waiting to be told how this Drugs Fund will
actually work. At the moment it is another hurdle for patients to jump over
at a time when they are ill & deeply distressed We are told patients still
need to be refused twice by PCT’s before their Doctors can apply to the
Drugs Fund. This is not good enough – the NHS needs to get it’s paperwork in
place before raising patients hopes.

It really is great that the Interim Fund is there to help patients but they need to be very clear on how patients can access the fund and not raise hopes. Patients have spent too long battling against the PCT’s at a time when they need help. Please let’s put a stop to this and make it work.

Posted under Andy Thomas, Cancer Drugs

This post was written by AndyThomas on October 1, 2010