JAMES WHALE FUND ISSUED THE FOLLOWING PRESS RELEASE ON BEHALF OF KIDNEY CANCER PATIENTS IN ENGLAND

JUST TO LET YOU KNOW THAT TODAY THE JAMES WHALE FUND ISSUED THE FOLLOWING PRESS RELEASE ON BEHALF OF KIDNEY CANCER PATIENTS IN ENGLAND

Following on from Health Secretary Andrew Lansley’s announcement in July, an interim £50 million cancer drugs fund was launched today which could grant access to vital life-prolonging drugs for thousands of cancer patients.

Broadcaster James Whale, founder of the James Whale Fund for Kidney Cancer, said “Today’s launch of the Interim Cancer Drugs Fund offers a ray of hope to kidney cancer patients, many of whom are in the depths of despair because they have been denied cancer treatment by their local NHS Primary Care Trusts. We applaud the creation of this Cancer Drugs Fund, but we need to know the Fund really will do what the Prime Minister told us it would”

Rose Woodward, a survivor of kidney cancer and Patient Advocate for the Fund expressed caution; “ we have spent the weeks since the announcement of the Interim Cancer Fund trying to find out from NHS managers how cancer patients could access the millions of pounds in the Fund. We have kidney cancer patients lined up waiting to be told how this Drug’s Fund will actually work. At the moment it is yet another hurdle for patients to jump over at a time when they are ill & deeply distressed. We are told patients still need to be refused twice by PCTs before their doctors can apply to the Drugs Fund. This is not good enough – the NHS needs to get its paperwork in place before raising patient’s hopes.”

If you need any advice about the Fund or the processes that govern it , then please drop an email to me at the email address below .

Many of you will have noticed that in the above press release article we could only talk about kidney cancer patients in England, quite what is happening in Wales or Scotland we are not being told, if you have any information or can find out please post it here or let me know and we’ll make sure the patients concerned get the best help we can give them to get a similar arrangement. It’s shocking that this new Fund should discriminate against patients in Scotland and Wales – has the world gone stark raving bonkers. If the drugs work in England then they will work on Wales or Scotland. Every patients life is valuable not just the English!

Julia Black who works so hard as a patient advocate for us all is doing a lot of work on this and is in correspondence with all the Strategic Health Authorties around the Country so we’ll keep you posted. When we know so will you.

Take care,

Rose Woodward – contact@kidneycancersupportnetwork.co.uk

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