James Whale Fund for Kidney Cancer welcomes NICE’s approval of drug in the fight against kidney cancer

Good news for Kidney Cancer patients in the UK! This is the latest press release from The James Whale Fund for Kidney Cancer on Votrient.

James Whale Fund for Kidney Cancer welcomes NICE’s approval of drug in the fight against kidney cancer

The UK’s leading specialist kidney cancer charity has welcomed the news that NICE has approved GlaxoSmithKline’s Votrient for the first-line treatment of patients with advanced renal cell cancer. However, following on from recent news that cancer survival rates in Britain lag behind those in other Western European countries, the Fund has expressed concern that more needs to be done.

Rose Woodward, a kidney cancer survivor and Head of Patient Support at James Whale Fund for Kidney Cancer said;

“We are relieved that NICE has recognised the importance that there must be more than one type of drug to treat late stage kidney cancer. Until today there has only been one drug available to clinicians to prescribe to their patients and this has proven not to be effective for everyone. We hope that Votrient will help fill that gap. We have campaigned for many years for more drugs like Votrient to be made readily available because kidney cancer is a type of cancer that is very difficult to treat. It cannot be treated with chemotherapy or radiation therapy like many other cancers. Once kidney cancer spreads, these new drugs are the only hope that patients have to extend their life.”

Broadcaster James Whale, founder and Chairman of James Whale Fund for kidney Cancer and a kidney cancer survivor said;

“Kidney cancer patients will find this approval of the cancer drug Votrient a great comfort so close to Christmas. NICE has been fully aware that the mood of the Government and the general public is that terminally ill cancer patients should not be denied cancer treatment and, after the farce surrounding the refusal of Everolimus earlier last month, some good news is long overdue. As someone who has been directly affected by kidney cancer, I understand just how imperative access to these life-prolonging drugs is.”

Julia Black, member of the Patient Advocate Team for James Whale Fund for Kidney Cancer said;

“The UK’s cancer death rate is currently higher than the European average and NICE’s decisions are having a profound effect on the way we treat our cancer patients and the quality of health care available. It leaves UK kidney cancer patients at a major disadvantage in terms of the availability of state-of-the-art cancer drugs, and this means patients in the UK are likely to die prematurely compared to the rest of Europe and the USA. This is unacceptable. We are forever hopeful that NICE will now see the need for a second-line treatment and look forward to the appeal for Everolimus at the end of February 2011.”

Editor’s Notes:

James Whale Fund for Kidney Cancer is the UK’s leading kidney cancer charity and was set up in 2006 by broadcaster James Whale who lost a kidney to cancer. Today James continues to lead a full and busy life, as do the majority of people who are diagnosed and treated early. Every year almost 7,000 people in the UK learn that they have kidney cancer; that’s over 16 people a day. And yet the condition – the eighth most common cancer among men – rarely attracts much public attention. Our mission at the James Whale Fund is to try and change that.

For more information about James Whale Fund for Kidney Cancer, please visit www.jameswhalefund.org or email Freddie Johnson at freddie@fullportion.com or call 0845 225 1500.

Posted under Andy Thomas, Votrient

This post was written by AndyThomas on December 24, 2010

NHS Cancer Drugs refused – NHS Homeopathy gets a Yes !?!**

Julia Black on behalf of the Kidney Cancer Suport Network, put up a Number 10 Downing Street Petition about the N I C E refusal to fund  cancer drugs: it was cut off in it’s prime when the new Coalition Government stopped all petitions and signing  while they thought about it !! But in the 6 weeks it was up on the site  we got  nearly 2000 signatures, which was pretty good in 6 weeks….anyway we have  just had the answer to Julia’s petition , you can read the response to that here…..
While I was looking at the site to see if the Coalition Gov. are going to continue to  “allow” it’s citizens to petition their Government on issues they feel strongly about, I noticed that a Dr was asking the DOH to force N I C E to appraise Homeopathy, presumably  to find out whether it is cost effective  to use millions of pounds of NHS money on Homeopathy  while they  refuse to fund clinically effective cancer drugs… the Government answer is here… I find this just incomprehensible – they should appraise the  clinical evidence    but to refuse to do that even , well honestly it makes you weep …..
Stay warm……
Rose   Woodward 

Posted under Campaigns, Cancer Drugs, N.I.C.E., Rose Woodward, Social Medicine

This post was written by Rose Woodward on December 6, 2010

Kidney Cancer Christmas Cards…..

For those Scrooges amongst us like me who haven’t got round to buying their Christmas Cards yet then why not buy them from The James Whale Fund for Kidney Cancer and make a difference.

Let’s face it Kidney Cancer doesn’t get much press and we really need to get this front and centre. So go on, order some from the Fund now by clicking on this link.

Posted under Andy Thomas, General

This post was written by AndyThomas on December 2, 2010