Kidney Cancer Careline FREE Advice & Support

Kidney Cancer Careline launched
9 March 2011

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James Whale Fund for Kidney Cancer today launched the Kidney Cancer Careline; a telephone helpline (0330 111 2 333) which provides help, advice, support and encouragement to kidney cancer patients, their carers and families.

The Careline is operated by a panel of cancer patients who can draw on their own experiences to support and encourage patients and their families during the difficult time following a diagnosis of kidney cancer.

The Careline provides the means for patients to make contact with someone who knows exactly how they feel; this understanding and empathy from other patients can provide a great deal of comfort during their cancer journey.

——————————————————————————–

If you would like a Careline poster for your clinic or sugery, click on the image on the right to download a file to print. Additional copies can be obtained, free of charge, from the Fund by emailing Leela Huckstep.

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The Careline can also provide advice about the process for accessing the latest treatments for kidney cancer, some of which are not available through the NHS, and can guide patients and their families through this process, as well as provide information about government funding schemes, such as the Cancer Drugs Fund.

Rose Woodward, Patient Advocate for the James Whale Fund said “We know a diagnosis of cancer can leave you feeling bewildered, confused, anxious and concerned about the future. This affects not only patients, but their families and everyone close to them. This is especially true when the diagnosis is for one of the less common cancers, such as kidney cancer.”

“Our unique Kidney Cancer Careline will be a listening ear and a friendly and knowledgeable voice at the end of the phone for the support of kidney cancer patients across the UK. We can offer kidney cancer patients and their families a route to obtain information personalised to their particular situation; no longer will patients be faced with searching through websites and a mountain of books and leaflets when they need help to answer those questions or concerns they may have once they are away from their hospital environment. “

“Our aim is to bridge the gap between the medical expertise of the hospital team and the patient and carer facing the reality of living day-to-day with kidney cancer.”

James Whale, Chairman and Founder of the Fund, said “We are really excited by the launch of the first careline in the UK totally dedicated to kidney cancer patients and their carers and families. One of the most important aspects of having a disease such as kidney cancer is being able to talk to someone who knows about the disease.

By staffing the Careline with cancer patients, we can offer help and support from the people who have experienced this devastating disease first hand. This can be a great comfort for both patients and their families when faced with a diagnosis of kidney cancer.”

The Kidney Cancer Careline is complimentary to the services already available from the James Whale Fund for Kidney Cancer. These include an online kidney cancer information service for patients and their families, an online chat forum (the Kidney Cancer Support Network), regional Patient Days and Kidney Cancer Care, a website dedicated to the provision of information about the kidney cancer treatment pathway. This variety of services enables the Fund to offer a bespoke service tailored to the needs of each individual patient.

The Kidney Cancer Careline can be accessed by calling 0330 111 2 333, seven days a week, emailing kcc@jameswhalefund.org or visiting www.kidneycancercare.org.uk. The Kidney Cancer Support Network can be found at www.kidneycancersupportnetwork.co.uk.

Posted under Welcome

This post was written by thefund on June 22, 2011

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Arch to Arc 1 day till lift off!

Arch to Arc Cycle Ride 2011
23 June 2011
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For the second year running the James Whale Fund for Kidney Cancer will be hosting this event.

The four day adventure from London’s Marble Arch to Paris’ Arch de Triomphe starts this Thursday 23 June.

Each rider has a fundraising target of £1,000. Hear Mike Day’s interview on BBC Essex a week before departure.

When: Thursday 23 June 2011 at 8am – Sunday 26 June 2011
Where: London (Marble Arch) to Paris (Arc de Triomphe)

The actual start location (riders will gather at 6.30am for an 7.00am start) will be Speaker’s Corner, adjacent to Marble Arch.

For more information and the opportunity to support a rider please visit the Arch to Arc website here:
www.archtoarc.com

Posted under Events

This post was written by thefund on June 22, 2011

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Dine with #Celebs at our fifth Anniversary Ball & help fight #Kidney Cancer

James Whale Fund Anniversary Ball, Plaza Park Hotel, London
24 September 2011
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Date: Saturday 24 September

Venue: Park Plaza, Westminster, London

Time: 7.00pm

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Our Anniversary Ball will be held in the plush, new Park Plaza Hotel, Westminster Bridge, just across the river from Big Ben.

The event will raise vital funds to support the James Whale Fund as it celebrates its 5th Anniversary and continues to work on behalf of kidney cancer patients throughout the UK.

Come and join our supporter Chris Tarrant (who has kindly volunteered to host the evening for us) and hundreds of guests including celebrities from the world of broadcasting and TV.

James Whale invites you to attend here.

It promises to be a spectacular night of fun and glamour
We’ll start the evening with a Champagne reception accompanied by live musicians, then enjoy a superb three course dinner with wine, in the magnificent Westminster Ballroom, followed by coffee and petit fours. There will be a cabarat, live band, dancing and live auctions, conducted by Chris Tarrant.

Bring your partner, family and friends. Individual tickets can be booked at £125 each, or you can reserve a Table for 10 guests for £1,250. Or you can splash out and book a Platium Table for 8 (and be joined by a celebrity host and partner) for £2,000. But be quick – only five Platinum tables are available!

Make a reservation online now. Pay by credit card or Pay Pal

Perhaps you’d like to offer us a prize for our tree of life raffle or auction? Click here for full details

An event supported by Maris Interiors LLP

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Travel notes:
Park Plaza Hotel, 200 Westminster Bridge Road, London SE1 7UT
Nearest tube or rail station: Waterloo (7 mins walk)
Nearest car park: Car Parks 4U, Station Approach, Waterloo International Terminal, London, SE1 7LY (3 mins walk)

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Posted under Events

This post was written by thefund on June 20, 2011

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#Kidney Cancer Small Charities Weeks

And so it begins… Small Charity Week 2011

Small Charity Week kicks off this morning as we take to the street with an audacious campaign to get everyone behind the small charity sector. The I Love Small Charities Pledge is an opportunity for anyone, wherever they are, to sign up to find out more about small charities and how they can help our sector to thrive.

We want people everywhere to pledge to do something to help out a small charity between now and Small Charity Week 2012 (yes, we’re planning it already!). Some people may donate their time or talents, others may donate funds. Some people may want to help out on an ongoing basis, others as a one-off. Some people want to support a specific cause, others a charity near where they live. Whatever the motivation, the I Love Small Charities Pledge is all about getting the information that will make it easy to support a small charity.

Once someone signs up to the pledge they will receive regular emails showcasing small charities and offering advice on how a volunteer or donor can make a meaningful impact on an organisation.
In London the pledge will be taking to the streets to sign up the public and garner some attention for Small Charity Week. In the evening some of our VIP friends will be signing the pledge – keep an eye on the website www.smallcharityweek.com for the latest updates.

Sign the Pledge

Anyone can sign the pledge by visiting www.smallcharityweek.com/pledge . This is a chance for us to promote the whole sector, so please add it to your Facebook page, tweet about it or tell whoever you can.

Be Part of It

As well as the events taking place throughout the week, you can get involved in Small Charity Week online. You can tweet about Small Charity Week using the hashtag #scweek11. Send pictures of your work or Small Charity Week activities to photos@smallcharityweek.com.

Small Charity Week is your week so make the most of it!

A Massive Thanks!

Small Charity Week wouldn’t be possible without the support of our amazing partners at the Charity Technology Trust (CTT). CTT connects the third sector with technology. Since 2001, they have been bridging the gap between the third sector and technology partners to help organisations improve their effectiveness. The CTXchange programme has enabled thousands of charities to work far more effectively using donated technology – speeding up communications, ensuring compatibility between equipment, and protecting systems. They also enable third sector organisations to share a range of finance, communications and campaigning services.

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Click to view this email in a browser If you no longer wish to receive these emails, please reply to this message with “Unsubscribe” in the subject line or simply click on the following link: Unsubscribe

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Posted under Fund Raising

This post was written by thefund on June 20, 2011

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Manchester Kidney Cancer Patient Day 15th of June

Manchester Patient Day – Feedback
by Julia » Thu Jun 16, 2011 9:21 am

A warm thank you to all who attended the Kidney Cancer Patient Day in Manchester yesterday

It was lovely to meet so many patients – some whom we have emailed and spoken to on the phone many many times but who we have never met, and those new patients who we met for the first time.

The day was a tremendous success with a fantastic attendance, and the feedback from patients and carers was very very positive.
It was wonderful to receive the comments about how informative the presentations were, how nice it was to speak to other patients and carers, and how comforting it is to know that you are not alone – to quote just a few!!!

I must say a big thank you to all the speakers, for the very helpful and interesting talks they all gave. I know from the patients and carers I did manage to speak to how useful these talks were and how much they gained just from attending.

A thank you must also go to the James Whale Fund and especially to Sharon for organising the whole day that we know is so important to patients. It is no easy task putting the day together, bringing speakers on board to give up their time for the day, organising the venue and of course ensuring patients and carers know about it. Without the support of the James Whale Fund this day would not be possible, so a huge thank you to all.

I mustn’t forget a very heartfelt thank you to Professor Hawkins and all his team for their huge support and backing for running this day for kidney cancer patients.
If you are reading this forum for the first time following the patient day a very warm welcome to you.
Have a look through, see the topics discussed, join up, don’t be afraid to start a new discussion if you have questions to ask. You will see we have a very helpful community of Kidney Cancer patients and carers who are all more than willing to share their experiences for the benefit of others.

We really hope you enjoyed the day and find our forum helpful.
If you have any questions at all about the forum or any questions left over from the patient day itself then please do not hesitate to contact either Rose or myself on:
contact@kidneycancersupportnetwork.co.uk

Or you can call us via the CareLine on: 0330 111 2 333

Posted under Events

This post was written by thefund on June 20, 2011

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5th Anniversry Birthday Party for James Whale Fund For Kidney Cancer

James Whale Fund Anniversary Ball, Plaza Park Hotel, London
24 September 2011
——————————————————————————–
Date: Saturday 24 September

Venue: Park Plaza, Westminster, London

Time: 7.00pm

——————————————————————————–

Our Anniversary Ball will be held in the plush, new Park Plaza Hotel, Westminster Bridge, just across the river from Big Ben.

The event will raise vital funds to support the James Whale Fund as it celebrates its 5th Anniversary and continues to work on behalf of kidney cancer patients throughout the UK.

Come and join our supporter Chris Tarrant (who has kindly volunteered to host the evening for us) and hundreds of guests including celebrities from the world of broadcasting and TV.

James Whale invites you to attend here.

It promises to be a spectacular night of fun and glamour
We’ll start the evening with a Champagne reception accompanied by live musicians, then enjoy a superb three course dinner with wine, in the magnificent Westminster Ballroom, followed by coffee and petit fours. There will be a cabarat, live band, dancing and live auctions, conducted by Chris Tarrant.

Bring your partner, family and friends. Individual tickets can be booked at £125 each, or you can reserve a Table for 10 guests for £1,250. Or you can splash out and book a Platium Table for 8 (and be joined by a celebrity host and partner) for £2,000. But be quick – only five Platinum tables are available!

Make a reservation online now. Pay by credit card or Pay Pal

Perhaps you’d like to offer us a prize for our tree of life raffle or auction? Click here for full details

An event supported by Maris Interiors LLP

——————————————————————————–

Travel notes:
Park Plaza Hotel, 200 Westminster Bridge Road, London SE1 7UT
Nearest tube or rail station: Waterloo (7 mins walk)
Nearest car park: Car Parks 4U, Station Approach, Waterloo International Terminal, London, SE1 7LY (3 mins walk)

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Posted under Events

This post was written by thefund on June 6, 2011

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Kidney Cancer Careline Call today for FREE Support and Information

Kidney Cancer Careline launched
9 March 2011

——————————————————————————–

James Whale Fund for Kidney Cancer today launched the Kidney Cancer Careline; a telephone helpline (0330 111 2 333) which provides help, advice, support and encouragement to kidney cancer patients, their carers and families.

The Careline is operated by a panel of cancer patients who can draw on their own experiences to support and encourage patients and their families during the difficult time following a diagnosis of kidney cancer.

The Careline provides the means for patients to make contact with someone who knows exactly how they feel; this understanding and empathy from other patients can provide a great deal of comfort during their cancer journey.

——————————————————————————–

If you would like a Careline poster for your clinic or sugery, click on the image on the right to download a file to print. Additional copies can be obtained, free of charge, from the Fund by emailing Leela Huckstep.

——————————————————————————–

The Careline can also provide advice about the process for accessing the latest treatments for kidney cancer, some of which are not available through the NHS, and can guide patients and their families through this process, as well as provide information about government funding schemes, such as the Cancer Drugs Fund.

Rose Woodward, Patient Advocate for the James Whale Fund said “We know a diagnosis of cancer can leave you feeling bewildered, confused, anxious and concerned about the future. This affects not only patients, but their families and everyone close to them. This is especially true when the diagnosis is for one of the less common cancers, such as kidney cancer.”

“Our unique Kidney Cancer Careline will be a listening ear and a friendly and knowledgeable voice at the end of the phone for the support of kidney cancer patients across the UK. We can offer kidney cancer patients and their families a route to obtain information personalised to their particular situation; no longer will patients be faced with searching through websites and a mountain of books and leaflets when they need help to answer those questions or concerns they may have once they are away from their hospital environment. “

“Our aim is to bridge the gap between the medical expertise of the hospital team and the patient and carer facing the reality of living day-to-day with kidney cancer.”

James Whale, Chairman and Founder of the Fund, said “We are really excited by the launch of the first careline in the UK totally dedicated to kidney cancer patients and their carers and families. One of the most important aspects of having a disease such as kidney cancer is being able to talk to someone who knows about the disease.

By staffing the Careline with cancer patients, we can offer help and support from the people who have experienced this devastating disease first hand. This can be a great comfort for both patients and their families when faced with a diagnosis of kidney cancer.”

The Kidney Cancer Careline is complimentary to the services already available from the James Whale Fund for Kidney Cancer. These include an online kidney cancer information service for patients and their families, an online chat forum (the Kidney Cancer Support Network), regional Patient Days and Kidney Cancer Care, a website dedicated to the provision of information about the kidney cancer treatment pathway. This variety of services enables the Fund to offer a bespoke service tailored to the needs of each individual patient.

The Kidney Cancer Careline can be accessed by calling 0330 111 2 333, seven days a week, emailing kcc@jameswhalefund.org or visiting www.kidneycancercare.org.uk. The Kidney Cancer Support Network can be found at www.kidneycancersupportnetwork.co.uk.

Posted under Uncategorized, Welcome

This post was written by thefund on June 6, 2011

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Ann-Marie Lavery Cycling Challenge in aid of James Whale Fund for Kidney Cancer

 

Whilst we are all taking it easy over the May Bank Holiday weekend, Ann-Marie Lavery and friends will be raising money for the James Whale Fund by cycling coast to coast and back again.

Ann-Marie is raising money through her Just Giving page in memory of her husband David Beecroft who lost his battle with kidney cancer last year. In her own words she says –  ”Please help if you can, however small of a donation, every penny counts. Please tell your friends about my page. This is a journey for me to give back and make a difference, I can only do this with your help. Thank you”

Visit www.justgiving.com/ann-marie-lavery to help.

Posted under Fund Raising

This post was written by thefund on June 6, 2011

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Manchester #Kidney Cancer Patient Day Weds June 15th

James Whale Fund Patient Day: Salford Quays, Manchester
15 June 2011
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Following the success of the Fund’s Patient Days in 2009 and 2010, the programme has been extended to several Patient Days in 2011.

There were well attended Patient Days in Cardiff, Swansea and Carmarthen in March this year and there are more to come: at The Lowry Centre, Salford Quays, Manchester M50 3AZ on Wednesday 15 June, in Glasgow on Wednesday 5 October and in the South East on Wednesday 16 November.

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Have you recently been diagnosed with kidney cancer?

Would you like to learn more about kidney cancer and treatments for kidney cancer direct from the experts?

Are you interested in meeting other kidney cancer patients with or those who have received treatment and recovered?

Would you like more information about the support available to kidney cancer patients and their families?
Then come and be part of our Patient Day at The Lowry Centre, Salford Quays, Manchester.

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Agenda
Professor Robert Hawkins, Cancer Research UK Professor and Director of Medical Oncology at the University of Manchester and the Christie Hospital NHS Trust, will chair the Day.

He will also be giving the plenary presentation on his very exciting research with high dose interleukin-2 (HD IL-2), sequential treatment and new treatment options for kidney cancer.

The day also includes presentations on kidney cancer surgery, radiotherapy, the work of the clinical nurse specialist, patient support and the James Whale Fund nurse training programme. In the afternoon, there will be an interactive Question and Answer session with some of the UK’s leading kidney cancer specialists.

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Register now for the event in Salford Quays by completing the registration form online

Click here for patients and carers (FREE)

Click here for professionals (@£55) or

email Sarah Ridge or

Ring 0844 474 5050 between 10am-4pm and ask for a Manchester Patient Day registration form.

Patients and family members are FREE to attend! (Reasonable travel expenses for patients and their families will be paid for by the James Whale Fund).

Click this link for your tranport options to the The Lowry Centre, Salford Quays,

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Other Patient Days
If you have been unable to attend Patient Days held already this year, and cannot attend our Manchester Day, we are holding two further events this year:

Wednesday 5 October in Glasgow (venue to be announced).
Wednesday 16 November in the South East (venue to be announced).

The format and content of each Patient Day will be similar, but with different speakers.

We look forward to welcoming you to one of our Patient Days this year!

Posted under Events

This post was written by thefund on June 6, 2011

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Celebrity-Am Golf Day Challenge

Celebrity-Am Golf Team Challenge, The Oxfordshire.
19 August 2011

European Tour professional Benn Barham, has organised the inaugural James Whale Fund Celebrity-Am Golf Team Challenge to be held on Friday 19 August at The Oxfordshire Golf Resort, shown above.

http://www.jameswhalefund.org/page_785.html

Benn, who is a kidney cancer survivor, is an Ambassador for the the UK’s leading kidney cancer charity and has invited a host of celebrities to take part in a challenge tournament to raise money for kidney cancer patients. You can be there too!

All you need to do put together a team of three, (or come as an individual and we’ll sort you out with partners) and we’ll provide you with a celebrity team member. The entry fee is £750 (£250 per individual) and there will be lots to enjoy…

It’s a great course, set in the heart of the picturesque Chilterns; designed and built by Rees Jones and offering a wealth of challenges.

The day will start at 8am with breakfast. The shotgun start at 10am will send your team around the course, where you will find plentiful snacks and refeshments. Afternoon tea will follow on the veranda at 4.30pm before a Champagne reception and three course dinner with wine. Some (short!) speeches will precede the presentation of prizes and the handsome Challenge trophy. Carriages at 7pm


You can book online here or contact John Chapman at organisers BGE by email or on 07899 996 583

The event is hosted by Leaderboard, supported by Maris Interiors LLP and organised by Bespoke Golf Events on behalf of James Whale Fund for Kidney Cancer.


Travel notes
Rycote Lane, Milton Common, Thame, Oxfordshire OX9 2PU
The Oxfordshire Golf Resort

 

Posted under Fund Raising

This post was written by thefund on June 1, 2011