Article Cancer Drugs Fund to get £200m a year

Rose Woodward – Patient Advocate

At long last…… confirmation that the

Cancer Drugs Fund to get £200m a year  

There was good news for cancer patients in England this week after the government confirmed it will provide £600 million for a three-year fund to improve access to new cancer drugs on the National Health Service.

There had been fears that the pot may be reduced under the current spurt of cost cuts, but the Department of Health announced yesterday that £200 million a year will be made available for the Cancer Drugs Fund from 2011 to 2013. 

The move is designed to help patients get better access to therapies recommended by their specialists, even if they have not been approved by cost regulator the National Institute for Health and Clinical Excellence, giving clinicians yet more power to dish out the treatments they feel are the most appropriate.

In addition, it is hoped that the extra cash pile – which is separate from existing Primary Care Trust budgets – will also help to improve the country’s ranking in terms of the provision of innovative cancer treatment to patients, as it is low on the list compared with many of its global peers.

Just a few weeks ago the government said it is has also set aside £50 million for an interim fund to help patients get treatment with drugs that have the potential to extend survival or improve quality of life before the fund ‘proper’ is launched next year, with clinically-led panels deciding on how to spend this money for patients locally.

The move does not take away from NICE’s remit, as the Institute will continue to appraise most significant new drugs and will have an important part to play in the government’s plans to switch to a system of value-based pricing for new medicines when the current Pharmaceutical Price Regulation Scheme expires, it said.

“Our longer-term plans will change the way we pay for drugs so that patients get better access to drugs and the NHS and the taxpayer get better value for money,” commented health secretary Andrew Lansley.

Consultation launched

The DH has now kicked off a consultation over its plans, seeking public opinion on the arrangements and other proposals for the fund’s operation, including ways in which patients and clinicians can be supported to make the best treatment decisions and what the scope of the Fund should be.

The Association of the British Pharmaceutical Industry has welcomed the launch of the public consultation and the government’s commitment of £200 million a year to help boost patient access to innovative cancer treatments.

Director-General Richard Barker said the consultation raises many important questions about how the fund will operate, such as “whether the fund should be administered at regional or national level and how to ensure that NHS cancer patients across England have a fair, timely and equal opportunity to benefit from the fund”.

The consultation will run until January 19, 2011.Its really important that as many cancer patients and families complete the consultation document and let the NHS know how we feel and to stress the need for this Cancer Drugs Fund to be continued for as long as some people in the NHS wish to refuse treatment to cancer patients.

 Please contact me if you would like a consultation document sent to you by email..

or download it from our patient forum at

Rose Woodward

Posted under Afinitor(aka Everolimus/RAD001), Avastin, Campaigns, Cancer Drugs, General, N.I.C.E., Nexavar, Patient Day 17thNov2010, Rose Woodward, Social Medicine, Torisel

This post was written by Rose Woodward on October 28, 2010

James Whale Fund for Kidney Cancer Curry Night a Huge Success

What a great evening we all had last night at “Le Raj” in Epsom Downs. The food was fantastic, the staff were excellent and I can’t believe that Enam Ali gave all of this for free! which meant all the money raised went to the Fund directly.

I cant remember the exact total that Chris Tarrant and Shane Richie raised in the auction at the end of the meal but they’re clearly used to doing this kind of stuff and used all their guile to eek out every last penny from the diners. The bids went way beyond my wallet capacity.

So, was a Chris Tarrant the same person off screen as he is on screen? I asked if he minded me taking a photo, you make up your own minds……

One of the bids got very confusing, it started as “A days archery with James Whale and a few of his friends” and ended up as (and this is my best guess) “A day with Shane Richie dressed as Robin Hood in the forest with the person bidding dressed, (or not), as Lady Godiva on horseback”. Anyway money has changed hands now, promises have been made and photographers are on standby, so good luck with that one Sandy! And let’s hope it’s a warm day!

As usual the James Whale Fund team did an excellent job of pulling this all together, they do it with such ease now it all seems second nature, although I’m sure Sarah would say something different.

Great night out! Thanks.

All the money raised goes towards helping fund initiatives for Kidney Cancer such as the Nurses Training Courses and the Patient Day on the 17th November

Posted under Andy Thomas, Patient Day 17thNov2010

This post was written by AndyThomas on October 20, 2010

James Whale Fund Forging ahead

Make a note of this date in your diary 17th November. Why? Well first off it’s my birthday! But secondly the James Whale Fund is holding another Patient Day and (for the first time) a Nurses Study Day.

It seems a while since the last James Whale Fund patient day, but this one is almost upon us, so if you want to be part of it then make sure you register on-line at The James Whale Fund Web-Site.

The last one was a huge success and this one promises to be even better with more topics and discussions specifically for the patient and carer. I always love these things because it’s a great excuse to meet people face to face, we spend so much of our time on-line and I think it’s so much nicer to know who you’re talking to across the Internet.

I also look forward to hearing about the outcome of the first IKCC meeting (International Kidney Cancer Coalition) it’s good to see other organisations around the world getting round the table to share knowledge and experiences.

On top of the patient day a Nurses Study Day will be held at the same time and location and if you want more details of that then go to The James Whale Fund Web-Site.

There have been lots of fundraising events this year and it’s great to see the money is being put to best use and the focus is fully on the patient with days like these.

I hope to see you all there in November. My special dietary requirement for the day is “Birthday Cake”!

Please sponsor me by clicking on either of these links VirginGiving or JustGiving

Posted under Andy Thomas, Patient Day 17thNov2010

This post was written by AndyThomas on September 14, 2010