Kidney Cancer Patient Day in Scotland Wednesday 5th of October

Kidney Cancer Patient Days

Following the success of the Fund’s Kidney Cancer Patient Days in 2009 and 2010, the programme has been extended to several patient days in 2011.

Earlier this year, the Fund organised three very successful kidney cancer patient days in Cardiff, Swansea and Manchester. Our next one is near Glasgow:

• Wednesday 5 October at the Westerwood Hotel and Golf resort, Cumbernauld.
Join us at our next Patient Day in Scotland on Wednesday 5th October. Chaired by Mr Michael Aitchison, Consultant Urological Surgeon at Gartnaval General Hospital, Glasgow with presentations on novel treatments for kidney cancer, kidney cancer surgery, the role of the clinical nurse specialist, and patient support from some of Scotland’s leading kidney cancer specialists. This promises to be a very interesting and exciting day and we sincerely hope you can join us.

Registration via a free eticket can be found here -

A registration form for the Scottish event can be found here -

• Tuesday 15 November in South East England (venue to be announced)

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You migh like to attend one of the Fund’s kidney cancer patient days if;

Have you recently been diagnosed with kidney cancer?
Would you like to learn more about kidney cancer and treatments for kidney cancer direct from the experts?
You interested in meeting other kidney cancer patients with or those who have received treatment and recovered?
You like more information about the support available to kidney cancer patients and their families

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Kidney Cancer Patient Day, Manchester 15 June 2011
Post event comments:-

Professor Robert Hawkins, Cancer Research UK Professor and Director of Medical Oncology at the University of Manchester and the Christie Hospital NHS Trust, chaired the day attended by over 70 patients

A warm thank you to all who attended the Kidney Cancer Patient Day in Manchester last Wednesday, 15th June.

The day was a tremendous success with a fantastic attendance and the feedback from patients and carers was very positive. It was lovely to meet so many patients and their families or carers.

It was wonderful to receive the comments about how informative the presentations were, how nice it was to speak to other patients and carers, and how comforting it is to know that you are not alone – to quote just a few!

A big thank you to all the speakers, especially Professor Robert Hawkins and his team, for the very helpful and interesting talks they gave. Feedback from patients and carers was that they found the talks very useful and they gained a lot from attending the meeting.

These patient days are so important to patients and without the support of the team at the James Whale Fund this day would not have been possible.

The James Whale Fund will be organising their next patient day on Wednesday 5th October in Scotland (venue to be announced), so please keep this date in your diary!

If you have any questions left over from patient day or would like to find out more about the work that we do, then please do not hesitate to contact the patient support team on: contact@kidneycancersupportnetwork.co.uk

Or you can call us via the Kidney Cancer CareLine on: 0330 111 2 333

A collection of photos taken at the Manchester Patient Day can be found here.

Our medical publications officer, Sharon Deveson Kell has written a report on the patient day. (this is quite a large PDF document and will take a little time to download)

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Other Patient Days

If you have been unable to attend Patient Days held already this year we are holding two further events this year:

Wednesday 5 October in Cumbernauld, Scotland .

Tuesday 15 November in the South East (venue to be announced).

The format and content of each Patient Day will be similar, but with different speakers.

We look forward to welcoming you to one of our Patient Days this year!

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© 2007-2010 James Whale Fund Limited. Company No. 05937304. (England and Wales)
James Whale Fund for Kidney Cancer is a trading name of James Whale Fund Limited
Registered Charity No.1120146.
Registered office: The Mews, The Park Shudy Camps Cambridge CB21

Posted under Welcome

This post was written by thefund on September 26, 2011

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Diagnosed with Kidney Cancer? Call our Careline today!

Welcome to Kidney Cancer Care UK
James Whale Fund for Kidney Cancer, the UK’s leading specialist kidney cancer charity, will be developing this site to provide a variety of information on kidney cancer that is relevant to patients, their families and renal health professionals.

0330 111 2 333
Monday, Tuesday, Thursday & Friday 10am – 4pm

Wednesday 10am – 6pm

Saturday & Sunday 4 – 6pm

You can leave a message or email us outside these times.
This is a free service, but you can make a contribution online

Call charges are the same as for geographical landline numbers, even from a mobile phone.
What is Kidney Cancer Careline?
It is a telephone helpline providing information, support and encouragement to kidney cancer patients, their carers and families. It became active on 10 March 2011, World Kidney Day.

Who will I speak to?
Members of our friendly and helpful patient support team are all cancer patients or nurses. They all have firsthand experience of cancer and knowledge of the kidney cancer treatment pathway. They are happy to talk with you and offer help and support based on their personal experience of living with cancer.

How will it help me?
Our Careline provides the means for patients to make contact with someone who knows exactly how you might be feeling; this understanding and empathy from another patient can provide a great deal of comfort during your cancer journey.
We know that if you are a patient or a family member of someone who has been diagnosed with kidney cancer, one way to make life easier is to speak to someone in a similar position. Our Careline can also provide information about the process for accessing the latest treatments for kidney cancer, some of which are not routinely funded by the NHS. We can guide patients and their families through this process, as well as providing information about government funding schemes, such as the Cancer Drugs Fund.

Is there any other support you can offer?
If you would prefer to write to us, here’s our address
James Whale Fund for Kidney Cancer
46-48 King Street
Cambridge CB1 1LN
And you can always email our patient support team or you can join other patients and carers on our kidney cancer patient support network

Would you like to share your experiences?
If you have been diagnosed with kidney cancer, have received surgery, or have cared for someone with the condition and would like to share you experience with others, please let us know by email or by calling 0330 111 2 333.

We’re here to help you now – and in the

Posted under Welcome

This post was written by thefund on August 17, 2011

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Kidney Cancer Careline FREE Advice & Support

Kidney Cancer Careline launched
9 March 2011

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James Whale Fund for Kidney Cancer today launched the Kidney Cancer Careline; a telephone helpline (0330 111 2 333) which provides help, advice, support and encouragement to kidney cancer patients, their carers and families.

The Careline is operated by a panel of cancer patients who can draw on their own experiences to support and encourage patients and their families during the difficult time following a diagnosis of kidney cancer.

The Careline provides the means for patients to make contact with someone who knows exactly how they feel; this understanding and empathy from other patients can provide a great deal of comfort during their cancer journey.

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If you would like a Careline poster for your clinic or sugery, click on the image on the right to download a file to print. Additional copies can be obtained, free of charge, from the Fund by emailing Leela Huckstep.

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The Careline can also provide advice about the process for accessing the latest treatments for kidney cancer, some of which are not available through the NHS, and can guide patients and their families through this process, as well as provide information about government funding schemes, such as the Cancer Drugs Fund.

Rose Woodward, Patient Advocate for the James Whale Fund said “We know a diagnosis of cancer can leave you feeling bewildered, confused, anxious and concerned about the future. This affects not only patients, but their families and everyone close to them. This is especially true when the diagnosis is for one of the less common cancers, such as kidney cancer.”

“Our unique Kidney Cancer Careline will be a listening ear and a friendly and knowledgeable voice at the end of the phone for the support of kidney cancer patients across the UK. We can offer kidney cancer patients and their families a route to obtain information personalised to their particular situation; no longer will patients be faced with searching through websites and a mountain of books and leaflets when they need help to answer those questions or concerns they may have once they are away from their hospital environment. “

“Our aim is to bridge the gap between the medical expertise of the hospital team and the patient and carer facing the reality of living day-to-day with kidney cancer.”

James Whale, Chairman and Founder of the Fund, said “We are really excited by the launch of the first careline in the UK totally dedicated to kidney cancer patients and their carers and families. One of the most important aspects of having a disease such as kidney cancer is being able to talk to someone who knows about the disease.

By staffing the Careline with cancer patients, we can offer help and support from the people who have experienced this devastating disease first hand. This can be a great comfort for both patients and their families when faced with a diagnosis of kidney cancer.”

The Kidney Cancer Careline is complimentary to the services already available from the James Whale Fund for Kidney Cancer. These include an online kidney cancer information service for patients and their families, an online chat forum (the Kidney Cancer Support Network), regional Patient Days and Kidney Cancer Care, a website dedicated to the provision of information about the kidney cancer treatment pathway. This variety of services enables the Fund to offer a bespoke service tailored to the needs of each individual patient.

The Kidney Cancer Careline can be accessed by calling 0330 111 2 333, seven days a week, emailing kcc@jameswhalefund.org or visiting www.kidneycancercare.org.uk. The Kidney Cancer Support Network can be found at www.kidneycancersupportnetwork.co.uk.

Posted under Welcome

This post was written by thefund on June 22, 2011

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Kidney Cancer Careline Call today for FREE Support and Information

Kidney Cancer Careline launched
9 March 2011

——————————————————————————–

James Whale Fund for Kidney Cancer today launched the Kidney Cancer Careline; a telephone helpline (0330 111 2 333) which provides help, advice, support and encouragement to kidney cancer patients, their carers and families.

The Careline is operated by a panel of cancer patients who can draw on their own experiences to support and encourage patients and their families during the difficult time following a diagnosis of kidney cancer.

The Careline provides the means for patients to make contact with someone who knows exactly how they feel; this understanding and empathy from other patients can provide a great deal of comfort during their cancer journey.

——————————————————————————–

If you would like a Careline poster for your clinic or sugery, click on the image on the right to download a file to print. Additional copies can be obtained, free of charge, from the Fund by emailing Leela Huckstep.

——————————————————————————–

The Careline can also provide advice about the process for accessing the latest treatments for kidney cancer, some of which are not available through the NHS, and can guide patients and their families through this process, as well as provide information about government funding schemes, such as the Cancer Drugs Fund.

Rose Woodward, Patient Advocate for the James Whale Fund said “We know a diagnosis of cancer can leave you feeling bewildered, confused, anxious and concerned about the future. This affects not only patients, but their families and everyone close to them. This is especially true when the diagnosis is for one of the less common cancers, such as kidney cancer.”

“Our unique Kidney Cancer Careline will be a listening ear and a friendly and knowledgeable voice at the end of the phone for the support of kidney cancer patients across the UK. We can offer kidney cancer patients and their families a route to obtain information personalised to their particular situation; no longer will patients be faced with searching through websites and a mountain of books and leaflets when they need help to answer those questions or concerns they may have once they are away from their hospital environment. “

“Our aim is to bridge the gap between the medical expertise of the hospital team and the patient and carer facing the reality of living day-to-day with kidney cancer.”

James Whale, Chairman and Founder of the Fund, said “We are really excited by the launch of the first careline in the UK totally dedicated to kidney cancer patients and their carers and families. One of the most important aspects of having a disease such as kidney cancer is being able to talk to someone who knows about the disease.

By staffing the Careline with cancer patients, we can offer help and support from the people who have experienced this devastating disease first hand. This can be a great comfort for both patients and their families when faced with a diagnosis of kidney cancer.”

The Kidney Cancer Careline is complimentary to the services already available from the James Whale Fund for Kidney Cancer. These include an online kidney cancer information service for patients and their families, an online chat forum (the Kidney Cancer Support Network), regional Patient Days and Kidney Cancer Care, a website dedicated to the provision of information about the kidney cancer treatment pathway. This variety of services enables the Fund to offer a bespoke service tailored to the needs of each individual patient.

The Kidney Cancer Careline can be accessed by calling 0330 111 2 333, seven days a week, emailing kcc@jameswhalefund.org or visiting www.kidneycancercare.org.uk. The Kidney Cancer Support Network can be found at www.kidneycancersupportnetwork.co.uk.

Posted under Uncategorized, Welcome

This post was written by thefund on June 6, 2011

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A Reminder That This Blog Site is Multi-User

It’s been a while since I’ve mentioned this, but I thought I’d remind everyone that this site isn’t just for me, it’s for everyone.   Anyone can create a blog on here, it’s as simple as Registering (Click on the “Register” link on the left hand side menu under “User Control”).

The site uses the Standard WordPress software which pretty much every blog web-site uses.  If you want to know how to write a Post/blog then look in the “Help” Section in the left-hand menu (towards the bottom of the page), you’ll see a link called “How To Write a Blog”.

I’ve also made the site less Kidney Cancer centric which means any cancer patient/carer or family member can create a blog.

To also help it become less Kidney Cancer centric I’ve made the site accessible via 3 new URLs

I hope this helps a little and enables people to join together

Please sponsor me at either VirginGiving or JustGiving

Posted under Andy Thomas, General, Welcome

This post was written by AndyThomas on November 30, 2009

Welcome……

So why create this blog?

Well, the feedback I’ve been getting recently has made me understand that the blog section in KCR is too complex and a bit fiddly, and to be honest plain indigestible. I have to agree the implementation in the WIKI is not ideal.

So here I hope is the solution, WordPress. This is pretty much the standard when it comes to blogging software. I was going to tag it onto KCR but on retrospect they are two different animals therefore I’ve created a separate host.

I do hope you’ll like it and take the opportunity to get stuck in and have your say. I’ve set out some very basic “Rules” which you can find in the “About” page and if you need help on how to use a blog e.g. how to create post then the best thing to do is to read the links in the left hand menu section (Documentation and Help) which should tell you all you need to know.

So, if you want to start a new blog then simply register and send an email and you’ll be setup as an “author”

Anyway, happy blogging!!

Andy

Posted under Welcome

This post was written by AndyThomas on September 6, 2008